PITYRIASIS RUBRA PILARIS (PRP)


This web page is affiliated with an international PRP Support Group
(see below).  PRP is a rare skin disease that was first identified in the 1800s.

As a supplement to PRP information found elsewhere, this web page includes links to the following:


PRP MEMBER RESEARCH

An important and more recent PRP Support Group feature is to conduct member surveys.  A geographic survey is currently in progress.  It indicates the countries where PRP members live and results are currently available.

Another important research project is being developed with the assistance of many PRP Support Group members.  Results will focus on possible causal events leading to PRP and they will focus upon treatment options and outcomes.  Stay tuned!.

Our surveys

  • Geography Survey - Where PRP members live.  Please indicate your country.

  • PRP Survey #1 - Collects basic information about the beginning of PRP, incorrect diagnoses, and types of medications used.  This information will be combined with the results of subsequent PRP Surveys.  Please add your information and suggestions for future surveys.

  • PRP Survey #2 - To be developed.  Possible focus will be events prior to PRP.

 

Our findings and results

  • Geography Findings - Shows the international membership of the Support Group.  To add your information please use the Geographic Survey link (see above).  (Updated November 2005)

  • Results Survey #1 - Findings are now available (January 2005).

 

PRP REFERENCE BIBLIOGRAPHY

A PRP bibliography has been compiled of published medical journal articles.  It is an up-to-date listing with hundreds of articles published since 1960.  This document is a reference source for the medical community and the PRP patients they serve.

The document also includes a section containing patient-to-patient information and advice contributed by members of the PRP Support Group.

The complete document is available to be printed or downloaded.

  • PRP BibliographyClick here to view.  Updated December 2005.

    The PRP bibliography is a PDF document.  To view this document  you  need Adobe® Acrobat® Reader.  You can download this free reader at Adobe.  

 


PRP SUPPORT GROUP

There is an official international PRP Support Group Home Page and an e-mail discussion forum for this rare skin disease.  The primary goals of the group are to provide mutual support; to exchange useful information; and to provide a discussion forum about treatment options and outcomes.  The support group is also available to family members and friends of those who suffer from this condition.